与死亡打太极——临终患者及家属死亡应对策略的质性研究.pdfVIP

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与死亡打太极——临终患者及家属死亡应对策略的质性研究

阚吟诗张晓天徐天梦宋静雨龚霓岳鹏

[摘要]目的：探究临终患者及家属的死亡应对策略，为构建本土化安宁疗护服务模式提供现实依据。方法：

采用目的抽样法及滚雪球法，对20名临终患者及21名家属进行半结构式访谈，运用解释现象学分析法和隐喻法

进行资料分析和主题归纳。结果：包括五大主题：逃避、转折与迂回——掤手回掌；隐藏、忍耐与艰难决策——

藏锋敛锐；平衡、摇摆与稳定——攻守衡之；柔和行为、转化表达——柔化而出；寄托、仪式与传承——顺势而为。

结论：五大主题整合出临终患者及家属的死亡应对策略为“与死亡打太极”，研究结果为临终患者及家属的死亡应

对提供了更多文化视角下的理解，建议未来在顺应优秀中华文化基础上构建中国特色安宁疗护实践模式。

[关键词]临终患者；家属；死亡应对策略；文化；安宁疗护

[中图分类号]R47；R197[DOI]10.3969/j.issn.1672-1756.2024.07.007

PlayingTaiChiwithdeath:aqualitativestudyofdeathcopingstrategiesofterminallyillpatientsandfamilies/KAN

Yinshi,ZHANGXiaotian,XUTianmeng,SONGJingyu,GONGNi,YUEPeng//SchoolofNursing,CapitalMedical

University,Beijing,100069,China///ChinNursManag,2024,24(7):993-998

[Abstract]Objective:Toexplorethedeathcopingstrategiesofterminallyillpatientsandfamilies,andtoprovidea

realisticbasisfortheconstructionoflocalisedhospiceservicemodel.Methods:Semi-structuredinterviewswith20terminally

illpatientsand21familymemberswereconductedusingpurposivesamplingandsnowballingmethods,anddatawere

analysedandthemesweresummarisedusinginterpretativephenomenologicalanalysisandmetaphoricalmethods.Results:

Fivemajorthemeswereincluded:①Escapes,TurnsandDetours—Pushingthehandoutandcomebackin;②Hiding,

EnduranceandToughDecisions—Concealspearandrestrainsharpness;③Balance,swayandstability—Balancebetween

offenseanddefense;④SoftBehaviour,transformativeExpression—Softeningout;⑤Sustenance,RitualandHeritage—A

vehicleforbetterremembrance.Conclusion:Thefivethemesintegrateddeathc